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What you can do

Educate yourself

We all need to wise up on melanoma and other forms of skin cancer. To help, we have provided you with some key facts. Find out how to check, what to look out for and why it’s important for every member of the family to keep on top of their skin health.

Learn more

Spread the word

We believe that the more people know about melanoma the better. Unfortunately, when it comes to sun protection many underestimate the risks until it’s too late, so why not be one step ahead? Get savvy, create better habits, and then encourage others to do the same.

More details

Become a supporter

Whatever your age, interests or abilities there are loads of ways you can get involved in fundraising for us, from organising a car wash to running a half marathon, helping out at one of our events, or making us your charity of choice. Whatever you choose to do, we promise to support you right back.

Find out how

Media Resources

Media Resources

Web Banners: Billboard

Downloadable set of 10 web banners. 970px x 250px.

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Web Banners: Half Page

Downloadable set of 10 web banners. 300px x 650px.

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Web Banners: Leaderboard

Downloadable set of 10 web banners. 728px x 90px.

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Web Banners: MPU

Downloadable set of 10 web banners. 300px x 250px.

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Web Banners: Mail Alert

Downloadable set of 10 web banners. 600px x 400px.

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Web Banners: Mobile Leaderboard

Downloadable set of 2 web banners. 320px x 50px.

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Web Banners: Mobile Billboard

Downloadable set of 10 web banners. 320px x 100px.

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Our Inspiration

Our Inspiration

The Melanoma Fund (originally known as the Myfanwy Townsend Melanoma Research Fund) was founded in memory of Myfanwy by her husband Harry after she died from the disease in 1999.

Harry went on to dedicate his time to building the charity, until his death in 2020.

About Myfanwy

A dedicated wife and mother to three boys, Myfanwy was a nurse at the Horncastle House Nursing Home and at Queen Victoria Hospital in East Grinstead.

She was the former chairman of East Grinstead Operatic Society, the conductor of the Forest Row Royal National Lifeboat Institution Choir and ‘mother’ of the legendary Felbridge Juniors Rugby Club.

Alongside her husband Harry, she organised the 80 miles South Downs Way Run and the ‘World Trail Running Championships’ and was known and loved by all who knew her, but none so much as her husband and three boys.

Melanoma

Myfanwy was diagnosed with melanoma about 14 years before her death. After initial treatment, she had been in remission for 12 years, however the disease sadly recurred and spread to her lymph nodes. As the condition worsened, she was sent to the Royal Marsden for a scan, identifying that melanoma had spread to her brain.

Never Forgotten

Harry and Myfanwy had been married for 37 years and lived for each other. She was only 60. The family were all determined that she should never be forgotten; and established the charity to help stop what happened to them, from happening to others.

About Harry

As part of his mission to fight melanoma, Harry embarked on some of the toughest physical challenges possible, including climbing Kilimanjaro, walking the Pilgrim Trail, and competing in the gruelling Marathon des Sables.

He tackled the Grand Canyon twice, crossing it rim to rim non-stop with the entire front row of Wingspan Rugby Club (he was their coach at the time) to raise funds.

Harry the wheelbarrow man

In 2004 Harry walked 800 miles in 68 days, from one end of the North Island of New Zealand to the other with a wheelbarrow named ‘George’, collecting donations along the way. Whilst in New Zealand Harry met up with Mark Habgood, and with an interested group of clinicians and businesspeople and used some of his donations to form the Melanoma Foundation of New Zealand (now Melanoma NZ) which still thrives today.

Harry dedicated his life to remembering his late wife. His work has been far reaching and impactful, creative, and pervasive, meeting like-minded people and organisations to raise over £700,000 in donations, helping fund research by some of the best facilities in Europe.

Author

Harry wrote two books; ‘The Slowest Pilgrim’ and ‘Harry the Wheelbarrow Man’ (published by Dreamtime Publications) detailing his adventures and his achievements with the charity. He remained modest and dedicated to the end, saying; “We need to create impact and that’s why I’m doing it. If I can prevent someone from and going through what my family did, my job is done.”

We salute you Harry and will never forget your legacy!

Make a Donation

Our work is focused on raising awareness of melanoma and other forms of skin cancer, all undertaken by a small, but focused team. Today is a tough environment for all charities, especially for smaller organisations like ourselves who depend on donations to survive. All support is greatly appreciated.


About Melanoma

About Melanoma

Melanoma is not only the most deadly type of cancer of the skin but also the hardest to detect, however if it is recognised and treated early, it is nearly 100% curable. If not, the cancer can advance and spread to other parts of the body where it becomes hard to treat and can be fatal.

Melanoma may be less common than other skin cancers, however it is much more dangerous if not found early.

Melanoma is the 5th most common cancer in the UK, accounting for 4% of all new cancer cases. Around 16,200 new melanoma cases are diagnosed in the UK every year, that’s 44 every day (2015-2017).

Over the last decade, melanoma incidence rates have increased by almost two-fifths (38%) in the UK. Rates in females have increased by almost a third (30%), and rates in males have increased by almost half (47%) (2015-2017).

According to the World Health Organisation it is projected that in 2025, 19,513 people in the UK are expected to be diagnosed with melanoma, and approximately 3,119 people will die as a result.

Melanoma does not discriminate by age, race, or gender; everyone is at varying degrees of risk. Approximately 49% of melanoma cases in the UK are in females, and 51% are in males. In women, the most common site for melanoma is on the legs, and in men on the chest and back.

The seven point checklist for suspected melanoma

Major signs

Growth

If an existing mole gets larger or a new one is growing.

Shape

If the mole has an irregular outline.

Colour

If the colours are mixed shades of brown or black.

Minor signs

Size

If the mole is bigger than the blunt end of a pencil.

Edges

If it is inflamed or has a reddish edge.

Condition

If it is bleeding, oozing or crusting.

Sensitivity

If it starts to feel different: for example, itching or painful.

Predispositions

Naevi (Larger/irregular moles)

People with a strong family history of melanoma or who have a high number of large moles are at very high risk. Fortunately, very few people fall into this category. Large numbers of benign and dysplastic naevi are highly significant risk factors, with risk directly proportional to the number of naevi.

Skin type

Six skin types have been identified according to the ability of the skin to tan. People with skin types 1 and 2 are at greatest risk of developing malignant Melanoma, whereas people with naturally occurring brown or black skin have a much lower risk as the presence of high amounts of melanin in their skin acts as a shield, blocking the transmission of UV radiation.

Amelanotic melanoma

It is worth mentioning that, although rare, there are certain melanomas that may have no colour at all. These are referred to as ‘amelanotic’ melanomas, because they are conspicuously missing melanin; the dark pigment that gives most moles and melanomas their colour.

These unpigmented melanomas may be pinkish-looking, reddish, purple, normal skin colour or essentially clear and colourless.

Because it also shows no or little pigment, an amelanotic melanoma can be easily missed, even by experts. Further to this, presentation by patients and diagnosis by doctors and specialists is frequently delayed. Our advice is that apart from the typical changes usually associated with melanoma, any recent or odd looking skin lesions need to be checked out as soon as possible.

Sunburn and Melanoma

Although you don’t have to burn to contract melanoma, there is increasing evidence that excessive sun exposure, and particularly sunburn, when aged under 15 is a major risk factor for skin cancer in later life.

Protection of the skin of children and adolescents is therefore particularly important. Because of this, sunburn should be avoided by individuals of ALL ages.

Cause
All cancers are caused by damage to the DNA inside cells. This can be inherited in the form of genetic mutations, but most commonly, it builds up over a lifetime and is caused by environmental influences. DNA damage causes the cell to grow out of control, leading to a tumor. Melanoma is usually caused by damage from UV light from the sun, however sunbeds can also be a determining factor.

Make a Donation

Our work is focused on raising awareness of melanoma and other forms of skin cancer, all undertaken by a small, but focused team. Today is a tough environment for all charities, especially for smaller organisations like ourselves who depend on donations to survive. All support is greatly appreciated.


Promote Your Fundraising

Promote your fundraising

Make some noise and generate awareness!

There are so many ways to raise awareness of what you are doing, and in turn what we are doing. From promoting yourself on your social media platforms to making use of free editorial in local papers and online news websites, you can really fire up support.

The local community likes this type of news and it is full of opportunities so simply ask via telephone call then follow up with an email.

Generally, a worthwhile media story involves a local angle, interesting facts and figures, a human-interest story that readers can identify and a picture. Try to include an image of yourself in a one of our branded bibs (contact us and we will send you one) and always include a link to your online fundraising page.

Time management

Give yourself plenty of time to plan publicity around your fundraising event, announcing the details well in advance. Contact your local radio station and ask for the forward planning desk and the picture desk at your local press to ensure they add it in their diary.

Word-of-mouth

This is vital. Make sure all your friends and families, neighbours and on-line community know about what you are doing and get them to help out in promoting your event. The more people that are talking about what you are doing the more potential sponsors you’ll have.

Send details

Forward a press release style email using a simple ‘when, where, why and what approach. Follow up this us with a reminder (if you have heard nothing back) and ensure you provide a post event summary (with pictures) to announce your success.

Be brave!

Don’t feel shy about ringing journalists to check they’ve heard about your event. They need and want your stories!

On the day

Ensure you (or a friend) takes photographs and collects quotes and use these for a story after the event. You can even contact us for a quote.

Fundraising Pack

Here are some materials that will support and help boost your fundraising. You can also find more in-depth information, tips and advice on fundraising under our Get Involved tab.

We want to support you to help make your fundraising activity as successful as possible. So whether you’re baking cakes, signing up for a sporting challenge, organising a head shave or hosting a karaoke party – our free downloadable materials can help you get on your way to planning, organising and promoting your event. Remember, if you need our personal advice, we are only an email or phone call away!

Sponsor Me Form

Download PDF

Sponsor Me Poster

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You're Invited Poster

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Thank You Poster

Download PDF

If you plan on raising donations in cash, you will need to download the sponsorship form to collect your sponsorship. If your donors and supporters pay UK tax, make sure to tick the Gift Aid column and fill in their details so the Government can give the Melanoma Fund 25p for every £1 they donate. This way their donations can stretch even further.

If you require further assistance with media coverage and publicity please contact our publicity expert Michelle Baker on 07989551046 or email.

Email Michelle

Melanoma Facts and Advice

Melanoma Facts and Advice

If you are reading this you have taken a positive step towards healthier skin.

Here we will help you understand how and why to protect your skin, what to look out for, and when to take action. Please share this with your friends and family and keep everyone sun safe.

Melanoma and UV light

Sunburn should be avoided by individuals of all ages. There is increasing evidence that excessive sun exposure and particularly sunburn when aged under 15 is a major risk factor for skin cancer in later life. Protection of the skin of children and adolescents is therefore particularly important.

It is important to realise the cumulative nature of sun induced skin damage. This is of particular relevance to individuals now living in the UK who may have spent part of their lives in a tropical or sub-tropical environment.

Sun exposure giving rise to sunburn and subsequent skin damage, can take place in the UK. It is therefore essential to protect the skin of both adults and children in this country, particularly during periods of sunny weather during the spring and early summer.

Individuals who develop skin cancer do not always have a history of deliberate sunbathing. Those who have an outdoor occupation and those who have an outdoor recreation, such as golfing, gardening, skiing or sailing, are also at risk and must learn to protect their skin.

A four point approach to minimising sun induced skin damage is advised. These points are in descending order of importance:

Avoiding noon day sun

(between 11am and 3pm)

Seeking natural shade

in the form of trees or other shelter

Use of UPF (Ultraviolet Protection Factor) clothing as a sunscreen

including T-shirts, long-sleeved shirts and hats

Use of broad spectrum sun screen with an SPF of 15 or higher

to protect against UVB and with additional UVA protection

There is no such thing as a safe or healthy tan.

A tan is a sign that already damaged skin is trying to protect itself from further damage. The protecting power of a tan is weaker than that of a mild sunscreen of SPF2-4. That in at least 4 out of 5 cases, skin cancer is a preventable disease.

Do not use sunbeds!

If you are thinking of using a sunbed, we advise you not to. But don’t take our word for it. Here is some advice from others:

“Sunbeds are estimated to cause around 100 deaths from melanoma every year in the UK” Cancer Research UK

“When it comes to sunbeds it’s unfortunately a big NO. Irrefutable scientific studies have shown a very strong link between sunbeds and melanoma and non melanoma cancers” Paul Banwell FRCS(Plast)

“Sunbeds are “linked to 100,000 cancer cases a year in the UK” Daily Express

The simple fact is that sunbeds are not a safe alternative to lying outside in the sun, as skin will still be exposed to harmful UV rays.

There are many health risks linked to sunbeds which include:

Skin cancer

Premature ageing of skin

Sunburnt skin

Dryness and itching

Bumpy rashes

Eye irritation

“Using sunbeds before the age of 35 increases your risk of skin cancer by up to 75%,” says Katy Scammell of Cancer Research UK’s SunSmart campaign “they also accelerate the skin’s natural ageing process!”

Laws on sunbed use

It is now illegal for people under 18 years old to use sunbeds, including in tanning salons, beauty salons, leisure centres, gyms and hotels.

Although we obviously do not recommend using a sunbed, this advice is even more relevant to melanoma if:


You have been sunburnt in the past, particularly in childhood

You have fair skin that burns easily

You have a large number of freckles or red hair

You have a large number of moles

You’re taking medication that makes your skin more sensitive to sunlight

Anyone in your family has had skin cancer in the past

Further information can be obtained from the Cancer Research UK website at www.cancerresearchuk.org


Vitamin D and the sun

Doctors have warned recently about a sharp rise in cases of rickets, the bone disease in children. Vitamin D deficiency, which causes the condition has been blamed on that fact that children spend too long indoors, and also on parents who are over-vigilant with the sun cream.

According to a clinical review paper in the British Medical Journal by Professor Simon Pearce and Dr Tim Cheetham, there are several hundred cases of vitamin D deficiency reported among children in the UK every year.

“More than 50% of the UK adult population have insufficient levels of vitamin D and 16% have severe deficiency during winter and spring,” they say. “The highest rates are in Scotland, Northern Ireland and Northern England. People with pigmented skin are at high risk as are the elderly, obese individuals and those with malabsorption.”

What can we do?

We produce vitamin D when our skin is exposed to the ultraviolet B (UVB) rays in sunlight. To keep the body healthy, we need 5 to 30 minutes of sun exposure to the face, arms, back or legs (without sunscreen) twice a week, every week. Exposure to sunlight is a risk for melanoma, but this is referring to ‘prolonged’ exposure.

It is recommended that we use sunscreen after a few minutes in the sun; even when the sun is obscured. As the sun is a rare sight in winter (and during summer in the UK) we really need to get additional vitamin D from our diets (or from supplements) during this time, even if you are an outdoor person.

The intensity of UVB rays is also reduced by clouds, pollution and UVB will not travel through glass, so sitting next to a window will not give you enough sunlight to make vitamin D.


Advice on skin checking

Skin checking is an effective way of detecting melanoma and other types of skin cancer early, when it is the easiest to treat. The best way to examine your skin is part of a routine check, which helps you get to know your skin and also your body better too. An all over check can detect other issues such as fungal infections, joint and flexibility issues and even vascular problems.

Use the following as a guide to keeping it regular, simple and effective:

Check your skin each month after your bath or shower, when you are already naked and have time.

Ensure the room has plenty of light and use a full-length mirror and an angled hand-held mirror to help you spot hard to see areas.

Check the following areas in turn and/or get your partner to check the areas that you cannot easily see.

Head

Face, neck, ears, and scalp (use a comb/blow dryer to move hair and reveal scalp)

Front of body

Including legs and genital area

Back of body

Including backs of legs and buttocks

Side of body and arms

Raise your arms to see all and remember undersides

Hands and fingernails

Check beds of nails and in-between fingers and both sides of hands

Feet

Toenails, soles of your feet, and the spaces between your toes

Learn where your moles and lesions are, and their usual look and feel. Check for anything new or changing, such as a…

  • New mole (that looks different from your other moles)
  • New red or darker colour flaky patch that may be a little raised
  • Change in the size, shape, colour, or feel of a mole
  • Sore that doesn’t heal
  • New flesh-coloured firm bump

Keep a skin journal: Write down the dates of your skin self-exams and make notes about the way your skin looks on those dates. Photo-documentation is a great way to help check for changes over time.

If you are a single man, ensure you spend extra time examining your back and tricky-to-spot places!

Trust your instincts. If you find anything that worries you, however insignificant it may appear, make an appointment to see your GP immediately.


Learn Your ABCDE

To help you spot all types of skin cancer early and when it’s most treatable, we recommend you learn the following code:

A

is for Asymmetry

One half of the mole does not match the other half.

B

is for Border irregularity

The edges are ragged, notched, or blurred.

C

is for Colour

Variations from one area to another.

D

is for Diameter

While melanomas are usually greater than 6mm (the size of a pencil eraser) when diagnosed, they can be smaller.

E

is for Evolving

A mole or skin lesion that looks different from the rest or is changing in size, shape, or colour.

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Legacies

Legacies

Although an impressive 74% of the UK population support charities, only 6.3% remember to leave a legacy to their favourite charity. The reality is that without gifts left in Wills by people like you, many of the charities we know, and support (including us) wouldn’t even exist.

Writing a Will is an important step towards making sure your wishes can be respected. Once you have taken care of your family and friends, it’s also the perfect way to ensure that a charity like the Melanoma Fund can continue to make lasting impact on the community.

To find more about how you can help support a specific, campaign or dedicate a legacy to a particular person, please contact us.

Contact us

New Will

If you haven’t yet made your will, now is a good time! It is easier than you may think and although there is a small cost involved, it provides peace of mind, ensuring that your estate is in order should the worst happen. For further advice on writing a will simply contact your local solicitor.

Existing Will

If you already have a will and you want to include a gift to the Melanoma Fund in it, there may not be any need to rewrite it. You can ask a solicitor to add an amendment (called a codicil). As a general rule, if the change you wish to make is quite small or simple, you can use a codicil, and if the change is more significant or complex you should make a new will.

Financial Benefits

Leaving a gift in your will can also be highly tax efficient as it is free from inheritance tax. By choosing to leave a gift us, you could effectively reduce any tax your family or other beneficiaries would have to pay. For more information on how to leave a gift in your Will, your solicitor will also be able to help you.

Legacy 10 came into force on 6th April 2012. For people who die after this date and leave 10% of their estate to charity there is a corresponding reduction in the overall rate of Inheritance tax payable on the rest of the estate from 40% to 36%. It is also possible to achieve this saving by way of a deed of variation to insert the legacy to charity into a Will after someone has died.

Types of gift

There are three types of gift. You can leave a:

Share of your estate

A residuary gift

Fixed amount of money

A pecuniary gift

Particular item

A specific gift

If you have been touched by melanoma or any other form of skin cancer, you will understand the importance of our work.

Please help us in our mission. Any gift in your Will, large or small, will help us to grow our campaign reach, raise awareness to a wider audience, and educate a new generation. What a wonderful legacy to leave.

Get in touch

If you wish to contact us with regards to leaving a legacy to the Melanoma Fund, please email or call us on 01342 322508.

Email

Skin Check Clinics

Skin Check Clinics

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FAQ

Frequently Asked Questions

We have listed below the answers to some of the most frequently asked questions we have had about melanoma.

Unfortunately we are unable to answer your individual questions regarding diagnosis, treatment or prognosis of melanoma; if you do have any questions that are not covered below, or if you have a suspicious mole, please visit your GP immediately.

Melanoma is a type of skin cancer that occurs in melanocytes. These are the cells that make melanin, which gives skin its colour. Melanin also protects the deeper layers of the skin from the sun’s harmful ultraviolet (UV) rays. Melanoma is the most dangerous type of skin cancer; it can spread to other parts of the body through the lymph system or the blood and early diagnosis is vital.

Melanoma can present itself as a mole, freckle or birthmark that changes in colour or increases in size or texture, bleeds or has a persistent itch. These changes are normally noticed over a period of several weeks or months rather than days. If this rings bells, book an appointment to see your GP as soon as possible.

Any race or skin colour can get melanoma, however the most at risk are people with:

  • Fair white, freckled skin (and particularly red heads)
  • Lot of moles, especially larger and more irregular moles called the ‘dysplastic ​naevi syndrome’
  • A family history of melanoma; which doubles the risk

Melanoma grows deeper into the skin; the deeper it gets the more dangerous it becomes, which is why early detection is so important. As it progresses, cells break free and get into the tissue fluid channels (lymphatics) and are swept up to the ‘draining lymph nodes’ where the cells can take hold. These are sited in the groin, armpits and neck; the positioning of the melanoma will depend on which node will be affected.

Although more common on the back, arms and legs, melanoma can appear anywhere on the body, including those areas not exposed to the sun. There are rare forms of melanoma which can occur in the mouth, the retina, or an internal organ, without anything being visible on the skin.

Most common places for melanoma on men:

  • Head
  • Back
  • Neck
  • Trunk

Most common places for melanoma on women:

  • Arms
  • Legs

It is recommended that everyone should check their skin monthly, and if possible, back this up by booking an annual check with a professional. If you are in a high-risk category, you will need to increase this, however your GP will advise you on the best option for you.

Skin cancer is the most common, and melanoma is the fifth most common type of cancer in the UK. Rates of melanoma have more than doubled in the UK in the last 30 years, with incidence in women having doubled (100% increase) and for men nearly tripled (181%). It is one of our fastest rising cancers, and although still higher in older people, rates in 25-49 year olds increased by 70% over the same period*. Global cases will reach nearly half a million (466,914) by 2040, an increase of 62% on 2018 figures.

Exposure to ultraviolet radiation (UV) is the only known environmental risk factor for developing melanoma of the skin.

The “ABCDE” is a helpful way that you can determine the need for additional evaluation, especially useful when self-checking:

  • Asymmetry – one half of the spot does not match the other
  • Border Irregularity – the edges are uneven or blurred
  • Colour – the colour is uneven or has shades of different colours
  • Diameter – the area is more than five millimetres in size (about the size of a pencil eraser)
  • Evolving – changing in any way including bleeding, itching or appearance

Yes, so it is important to watch for any changes in the appearance of these moles, and get any concerns checked by your GP. People with more than 100 moles have a seven-fold greater risk of developing melanoma than those with fewer moles. Having multiple moles or nevi is a higher risk factor for melanoma than having light-coloured hair and fair skin.

Yes and some are more common than others. The most common form is called superficial spreading melanoma, which tends to enlarge gradually on the surface of the skin before growing into deeper layers of skin.

Others include:

  • Nodular melanoma: These are invasive (growing into deeper layers of skin) soon after they appear on the skin
  • Acral-lentiginous melanoma: This is the most common type of melanoma in dark-skinned individuals. It appears on the palms, nail beds, soles of the feet, mucous membranes, and penis
  • Lentigo maligna melanoma: Most cases arise in adults, primarily in the head and neck region. It is a slow growing form that can take many years before becoming invasive (growing into deeper layers of skin)
  • Amelanotic melanoma: These are rare and appear without pigmentation making them difficult to diagnose, however they still show changes in symmetry, borders, and size

If concerned, your GP will refer you to a specialist who will make a definitive diagnosis following an excisional biopsy. This is a procedure that removes the mole and a margin of tissue surrounding it, or with a “punch” biopsy if it is large, or in an awkward area of the body to reach.
A pathologist will look at the sample under a microscope and determine if the cells are cancerous. The biopsy sample allows the pathologist to determine the stage of disease, upon which treatment decisions are then made.

Staging is a method that clinicians use to categorise melanoma for the purpose of evaluation, treatment, and prognosis.

  • Stage I & II: Melanoma is confined to the site where the cancer occurred and has not spread to the lymph nodes or internal organs
  • Stage III: Melanoma has spread to the lymph nodes
  • Stage IV: Melanoma has spread to distant organs (metastasis)

Treatment decisions are based on the location and stage of the tumour, and factors specific to the individual patient.

These could include:

  • Surgery – including wide margin removal and reconstruction of the tumour site, sentinel lymph node biopsy, removal of lymph nodes or metastases
  • Chemotherapy/immunotherapy
  • Intralesional/injectable therapy
  • Radiation therapy
  • Surveillance
  • Clinical trials

Like many other types of cancer, melanoma is potentially curable when caught at an early stage. Once you have had melanoma however, you are at a higher risk than the general population of developing a new primary melanoma, as well as a recurrence of the original melanoma. Your GP will therefore ensure you have a regular check-up and long-lasting skin health surveillance.

Around five and 10-year survival rates for early-stage disease approach 90 percent and higher. Those survival rates gradually go down when the disease becomes more advanced. Your GP is best positioned to answer your questions based on the stage of melanoma you have.

This is a common question for patients with melanoma. The risk of developing a second primary melanoma is higher than the risk of people in the general population developing a first melanoma. Unfortunately, once you have had melanoma, you are also at risk of recurrence of the original cancer.

There are genetic variants or gene mutations, that make some individuals prone to developing melanoma. Individuals with these mutations have a strong family history of melanoma and carry a 60 to 90 percent lifetime risk of developing the disease.

If you have any further questions, or just want to give us feedback, please contact us.

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